Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Saturday, June 11, 2011

Paying it forward

For the last few weeks I have sat by helpless as a very close friend of mine faced a crisis in another state and I could do nothing. Between phone calls and listing and selling, and net-working I became more and more frustrated with the situation.

I met Roy on-line through talkshoe, way back (wow, 4 years?.. seems like yesterday) when an auctioneer friend was doing a series on Antiques. Getting to know him in the chat, and net-working with him on other sites, ie: Facebook, twitter, multipy, and other groups. I came to care about him and his wife. These two are a very special and rare couple. Married 37 years, and still going strong.

In February of 2010, I started chatting with Roy on a more personal level. We were in a group together, and he helped me get through some very tough spots in my life. The moral support and observations of someone on the outside looking in, kept me focused and level headed in my decision making. In April of 2010, after a bone marrow biopsy, Roy took over my listing for me. During this time, my marriage started to falter. I finally closed shop for good in August of of 2010, to focus on the home front. Roy took over everything for me. Up to now, he has continued to do so, even dealing with his own crises.

So now it's time for some pay back. I made some calls to a few close friends, my business partner in New York, and my best friend in Alabama, and we hit behind the scenes, to help this couple out.

I won't go into the details of Roys personal journey right now, but I will say, that he got me through mine, and I, and others close to him will get him through his.

If you can help in anyway, housing in the Cape May area, monetary donations, ect; then please do so. We have all hit struggles in our life at one point or another and we all need to know that there are people who love and care for us, regardless of where we reside.

I am putting Roys Paypal addy on here, or you can email me at gypsygirlmuse@gmail.com to help if you'd like.

roybaker@comcast.net

you can also find him here: http://myworld.ebay.com/2woofers
you can find me here: http://stores.ebay.com/GypsyByways

A portion of my sales will go to and continue to help Roy through out the coming months.

Thank you to any and all help.

Tuesday, May 3, 2011

Goals

Today is the day..... back to the Doctor. I have to say, this is a scary one for me, and something I rarely admit. My side is killing me, and I went cold turkey off all meds last July. I don't want meds again. I want my license and Paris, and ... yeah, Rick... eventually when we can mesh things together.

What I don't want is chemo. I swore to god they had better come up with something more effective, and as far as my research goes, they have not. I know this is back, I can feel it. I hate it, and I don't want it. It scares the shit out of me. I will NOT go back on chemo, so if any of my friends have links or advice or anything else that will get me through this holistically, then put them on here. I cannot take care of my kids and business, schooling and Paris if I am on chemo, won't work, and I refuse to give into this illness.

They call doctors practitioners for a reason, so, guess what? I can practice to, and google gives me a bevy of information on what I have and what I can possibly do to get me through this.

What I have? Retro peritoneal fibrosis. You can look it up, but basically it absorbs my internal organs. It is inflammation of internal organs and my spleen is gone, and now it is on my kidney and liver. WOW... did I say that out loud? Ya... I did. Sigh. Have to say, this sucks, but I will beat it. I did once before, and I will again.

It is an inflammation between the lining and the back wall of the peritoneum. On top of this, I have Raynauds and all this, together puts me at risk for a host of other cancers like non Hodgkins lymphoma, rare blood cancers, oh, and my recent fun with skin cancers. Basil cell is non invasive and easily taken care of, but not mine. Apparently I am an anomaly. Mine is invasive, just as invasive as melanoma. Hence my not being able to be out in the sun much, which annoys the crap out of me, because I LOVE the sun.

So, here's my thought... screw it! I will do what I can on my end, but I will NOT go on Chemo, and I will NOT give up my sun. I will however do everything else suggested.

Cats out of the bag. Have fun with this one, I know I will..... It's part of life.

Here is a link, and yes, mine is idiopathic, never been to the middle east and never did cocaine.http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001497/